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“All my life I have hated cliches, the cliches applied to people like me and those I love. Every time I pick up a book that purports to be about either poor people or queers or Southern women, I do so with a conscious anxiety, an awareness hat the books about us have often been cruel, small, and false. I have wanted our lives taken seriously and represented fully–with power and honesty and sympathy–to be hated or loved, or to terrify and obsess, but to be real, to have the power of the whole and the complex. I have never wanted politically correct parables made out of my grief, simple-minded rote speeches made from my rage, simplifications that reduce me to cardboard dimensions. But mostly that is what I have found. We are the ones they make fiction of–we queer and disenfranchised and female–and we have the right to demand our full, nasty, complicated lives, if only to justify all the times our reality has been stolen, mismade, and dishonored.”
- Dorthy Allison (reprinted in Writing with Style by Trimble, third edition).

I couldn’t help but think of mental illness while reading this paragraph. Our stories have been either played for laughs as the crazy sidekick, or else have been bogged down in the sad, serious memoirs by those who have “made it to the other side”. I wish we could all tell our own stories in a holistic way: not to be laughed at, but neither detached from the rest of who we are as is so often seen in nonfiction.

-Ashes

Most people know that there is a gradient of mental illness–a hierarchy that ranks the extremeness of disease involvement. I wonder where I rank on that scale.

I always knew that there was something different about my moods, in a way. I thought that everyone had the ups and downs that I experienced from an early age, but I thought that everyone else hid it. I didn’t think I was different, just that all the other people on the planet were better at concealing their craziness. I learned not to talk about my emotions. I because a master at presenting the face that everyone else did.

As I got older I became unable to hide my mood swings. They were becoming more intense and explosive, and once I was 14 or so I couldn’t keep it under control. Yet I still thought that my experience was the norm. I was just failing to toe the line. I went to shrinks then, but they diagnosed me with anxiety and depression. I tried many different meds but none of them made a dent. I gave up and went about my life.

It wasn’t until my Dad left for Iraq that my bipolar made its full appearance. Times of increased stress and change often precede the first real manifestation of mental illness. It was Koios that told me that not everyone had the same patterns of hypomania and depression, and he suggested that I go back to a shrink. I didn’t want to, as it hadn’t worked before. I suffered for a long time before I realized that bipolar would kill me if I didn’t seek treatment.

So my question is how crazy are you if you know that you’re crazy? Some people are in complete denial, under the spell of their disease. Others know that they aren’t neurotypical but can’t break free from their disorders. Then there are people like me. My mood swings were killing me. I loved my disorder and how alive it made me feel. Yet I was able to see reason enough to get help.

How do we define “crazy” or “mentally ill”? Is it a complete break from reason, or acting in ways that we can’t control? Let me know in the comments how you define it. I still haven’t figured it out.

-Ashes

While I had said in a previous post that I would never go to the emergency room by my own volition after experiencing prejudice from the medical staff, I proved myself wrong. Let me share with you the reason why I no longer swallow my pills dry.

My shrink prescribed me a medication for fibromyalgia, which I take at night with my Seroquel. Before the incident that landed me in the E.R. I had always taken my meds dry– no water or liquid was needed to get those babies down. My fibro med is a capsule rather than a tablet, unlike my other meds. You can probably see where this is going.

So I took my nighttime meds like usual and sat around online for a while. Then I stood up. Apparently, the act of standing made muscles in my throat tense up. The partially dissolved capsule exploded in my throat and the chemicals burst into my sinuses and mouth.

The pain was unbearable. I was running all over the apartment trying to spit. I gargled water and milk. I even used my neti pot to try to wash the chemicals out of my nose. It felt like my whole face was on fire. I collapsed on the floor and I don’t really remember a lot until Koios was trying to wake me up. I had passed out and was foaming at the mouth.

Koios called our friend and neighbor who used to be an EMT and Koios dragged me to his apartment. Once our neighbor saw me he said “We’re taking Ashes to the hospital NOW.” I don’t remember much of the car ride. I was in my neighbor’s passenger seat as he drove, still foaming out of my nose and mouth and going in and out of consciousness. I remember him asking me what show Koios was watching before this happened. It was “Ancient Aliens”, and I remember going on an incoherent rant about how the conspiracy theorists were assholes.

Luckily the E.R. was empty and I was seen quickly. My Seroquel was starting to hit so I was even more tired. The pain started receding as I sat on the bed. Koios was there with me. Our neighbor was nice enough to wait in the waiting room. The nurses hooked me up to an EKG and another device to monitor my breathing. They were waiting for the medication to be absorbed through my mucus membranes, as there wasn’t much they could do to stop the burning process now that it had started.

Once the doctor came the pain was mostly gone. I was tired from the Seroquel and just wanted to go home. I was afraid that the doctor would be mean or make fun of me for wasting his time, but he just told me to take my meds with water from now on. On my discharge sheet, under the reason for visit the doctor wrote “Pill misadventure”. He made me laugh. A nice E.R. doctor for once!

We were out of the E.R. by 1am and our neighbor drove us home. Hacking up bloody mucus from a sore throat was the only after-effect of the pill misadventure.

So, a word of warning: don’t spend your night in excruciating pain with a hefty hospital bill to show for it. Take your meds with water.

-Ashes

My psychiatrist has left my HMO. This isn’t the first time that this has happened to me but it makes me feel uncertain. I’m on a strange med mix for bipolar II: Adderall and Seroquel. You’d think that giving an upper and a downer to someone with rapid cycling bipolar would be a bad idea, but is works for me somehow. I’m afraid that my new shrink will want to fuck with my meds, despite the fact that this combination has been working for me for about 3 years.

At my last appointment with my old shrink she commented that I could lower my Seroquel dosage. I really don’t want to do that. Everything has been fine for me with the way my dosage has been; why would I want to change that? I’m petrified of changing my meds or doses. I’ve worked hard to get to the balanced place that I’m at now. The last thing I need is to fuck that up because of a suggestion from someone who isn’t living my life.

Have any of you had a psychiatrist try to alter your meds? How did you handle it? If you agreed to do it, did it turn out well for you?

I hope everyone had a great New Year’s Eve.
-Ashes

I’m sorry that I’ve neglected this blog. Things have been very hectic in my life, though luckily not because of my bipolar disorder. School has been kicking my ass and my family has been having drama.

Every fall and winter I end up “breaking through” my meds. Like many people with bipolar disorder, I also have Seasonal Affective Disorder. Seasonal Affective Disorder (SAD) is commonly known as the winter blues. When the days start to get shorter and darker my moods go haywire. I get extremely depressed and unmotivated. My (very unscientific) theory is that the chemical imbalances in my brain are increased by the changing of the season, which means that my meds can’t control all of my disorder.

I have a lightbox that simulates natural sunlight. All you have to do is turn on the lightbox and sit in front of it for 15-30 minutes, and it helps with the lack of sunlight that causes the mood swings from SAD. This year, however, I’ve been doing much better. I haven’t had to use my lightbox so far, which makes me very happy. Koios and my new place has a ton of windows so I think I’m getting more of the little natural light that remains than I did at our last apartment. I would recommend a lightbox to anyone, even those without SAD. Koios has mentioned that he feels better on the days that I turn it on.

That’s all that’s happening with me. Feel free to comment with other SAD treatments that have worked for you!
-Ashes

I’m Back!

Hey all, just a quick housekeeping note. I’m back! I have the internet again so I’ll be able to post more frequently.

-Ashes

Koios and I moved to a new apartment! This time I decided to do things differently than the other times we’ve moved because of my lack of motivation that comes with bipolar.

I used to never get anything done. I simply could gather the energy to attempt to do what needed to be done. Last time we moved, we packed everything in boxes but I never unpacked most of them. We had boxes that hadn’t been opened in 2 years! I’m so bad at moving that I have boxes in my car from when I moved out of my parents’ house. I want to be done moving so badly that I always half-ass it.

This time, I made sure that we only had 10 boxes. That way I’d have to unpack them before I could move anything else. I found that I have been more thoughtful about where I put stuff in the new place and more selective about the things to give to Goodwill.

It took more time (a lot more time, haha), but I tricked myself into working with my bipolar.

-Ashes

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